It can be scary and overwhelming – I had never even heard of anaphylaxis until my two year old son experienced it. I had no clue that his reactions to food could escalate to the place where he would not be able to breathe. I want to connect you to two of the points of help I have used and returned to since I discovered them. I was only informed of them 2 years ago, and wish I had known of their existence from the start. They are The Anaphylaxis Campaign and the British Society for Allergy & Clinical Immunology (BSACI)
Together they helped me find professionals as close as possible to where we live who have transformed my sons life – thanks to the GP agreeing to refer him to the relevant specialists after his fourth anaphylaxis. You can use the BSACI website to find a clinic or specialist near you. There is also a very handy part of their website aimed at supporting carers of those who suffer with severe allergies – many of your questions may be answered in their FAQ section.
The Anaphylaxis Campaign is a positive charity which exists to support those who live with severe allergies – themselves or in their family. They have a section for those who have been newly diagnosed to help you get everything you need to live as safely as possible. They also have a section on their website for teenagers who live with anaphylaxis. They run support groups for parents, families and young people. I love this charity! I hope that you are able to find the support and reassurance you need as you gain from their wealth of experience and insight into allergy and anaphylaxis.